The new Childhood Arthritis and Rheumatology Research Alliance (CARRA) registry: Design, rationale, and characteristics of patients enrolled in the first 12months Academic Article uri icon

Overview

MeSH Major

  • Arthritis, Juvenile
  • Bone Density
  • Calcitonin
  • Diphosphonates
  • Glucocorticoids
  • Lupus Erythematosus, Systemic
  • Osteoporosis
  • Vitamin D

abstract

  • The new CARRA Registry successfully enrolled nearly 1200 participants with JIA in the first 12¬†months of its operation. Sustainable funding has been secured from multiple sources. The CARRA Registry may serve as a model for the study of other uncommon diseases.

authors

publication date

  • April 17, 2017

Research

keywords

  • Academic Article

Identity

Language

  • eng

PubMed Central ID

  • PMC5392971

Digital Object Identifier (DOI)

  • 10.1186/s12969-017-0160-6

PubMed ID

  • 28416023

Additional Document Info

start page

  • 30

volume

  • 15

number

  • 1