The new Childhood Arthritis and Rheumatology Research Alliance (CARRA) registry: Design, rationale, and characteristics of patients enrolled in the first 12months
Lupus Erythematosus, Systemic
The new CARRA Registry successfully enrolled nearly 1200 participants with JIA in the first 12 months of its operation. Sustainable funding has been secured from multiple sources. The CARRA Registry may serve as a model for the study of other uncommon diseases.