Sociotechnical challenges to developing technologies for patient access to health information exchange data. Academic Article uri icon

Overview

MeSH

  • Computer Literacy
  • Humans
  • Interviews as Topic
  • Medical Informatics
  • Medical Record Linkage
  • Prospective Studies
  • Sociology, Medical

MeSH Major

  • Consumer Health Information
  • Electronic Health Records
  • Patient Access to Records

abstract

  • Providing patients with access to their medical data is widely expected to help educate and empower them to manage their own health. Health information exchange (HIE) infrastructures could potentially help patients access records across multiple healthcare providers. We studied three HIE organizations as they developed portals to give consumers access to HIE data previously exchanged only among healthcare organizations. To follow the development of new consumer portal technologies, and to identify barriers and facilitators to patient access to HIE data. Semistructured interviews of 15 key informants over a 2-year period spanning the development and early implementation of three new projects, coded according to a sociotechnical framework. As the organizations tried to develop functionality that fully served the needs of both providers and patients, plans were altered by technical barriers (primarily related to data standardization) and cultural and legal issues surrounding data access. Organizational changes also played an important role in altering project plans. In all three cases, patient access to data was significantly scaled back from initial plans. This prospective study revealed how sociotechnical factors previously identified as important in health information technology success and failure helped to shape the evolution of three novel consumer informatics projects. Barriers to providing patients with seamless access to their HIE data were multifactorial. Remedies will have to address technical, organizational, cultural, and other factors. Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions.

publication date

  • August 2014
  • July 2014

has subject area

  • Computer Literacy
  • Consumer Health Information
  • Electronic Health Records
  • Humans
  • Interviews as Topic
  • Medical Informatics
  • Medical Record Linkage
  • Patient Access to Records
  • Prospective Studies
  • Sociology, Medical

Research

keywords

  • Journal Article

Identity

Language

  • eng

PubMed Central ID

  • PMC4078272

Digital Object Identifier (DOI)

  • 10.1136/amiajnl-2013-002073

PubMed ID

  • 24064443

Additional Document Info

start page

  • 664

end page

  • 670

volume

  • 21

number

  • 4