Multicenter patient records research: security policies and tools. Academic Article uri icon

Overview

MeSH

  • Computer Security
  • Humans
  • United States

MeSH Major

  • Confidentiality
  • Medical Records Systems, Computerized
  • Multicenter Studies as Topic

abstract

  • The expanding health information infrastructure offers the promise of new medical knowledge drawn from patient records. Such promise will never be fulfilled, however, unless researchers first address policy issues regarding the rights and interests of both the patients and the institutions who hold their records. In this article, the authors analyze the interests of patients and institutions in light of public policy and institutional needs. They conclude that the multicenter study, with Institutional Review Board approval of each study at each site, protects the interests of both. "Anonymity" is no panacea, since patient records are so rich in information that they can never be truly anonymous. Researchers must earn and respect the trust of the public, as responsible stewards of facts about patients' lives. The authors find that computer security tools are needed to administer multicenter patient records studies and describe simple approaches that can be implemented using commercial database products.

publication date

  • December 1999
  • November 1999

has subject area

  • Computer Security
  • Confidentiality
  • Humans
  • Medical Records Systems, Computerized
  • Multicenter Studies as Topic
  • United States

Research

keywords

  • Journal Article

Identity

Language

  • eng

PubMed Central ID

  • PMC61386

PubMed ID

  • 10579601

Additional Document Info

start page

  • 435

end page

  • 443

volume

  • 6

number

  • 6